I went back to my specialist out of state. The visit went well. Though there aren’t any obvious improvements, my doc says he “feels good about it”. He changed a few of my meds and sent me on my way. I am now getting two iv infusions a day and might add a vitamin for a third infusion each day.
It is amazing. You can look around his lobby and recognize all the other lyme patients. They are the ones who can barely sit there comfortably, let alone walk. While we were there, a lady walked up and asked me if I have lyme. She pointed to my knee and said “my knee looks like yours.” This was her first visit. I think she was scared when I told her my knees got worse after I started treatment. She also traveled from Texas. Texas is one of the worst states to live in if you have lyme because the medical politics here are out of control. Hence my need to travel out of state to get a good lyme doctor.
Also on the lyme front, we lost a wonderful lyme advocate this month, Leslie Wermers. She was only 41 years old when lyme took her life. She is one of the founders of a wonderful website, http://www.lymefighters.org/ and appeared in a wonderful documentary about lyme, called Under Our Skin. Eerily, during her interview for the documentary, she said something along the lines of “This disease will take my life.” Her sister also has lyme. Very sad.